Pennacchia, J., Østvik , J., Dutia, I., Walsh, M., Coghill, D., Granlund, M., Imms, C. (2025).

Plain language summary:

This systematic review aimed to identify and describe instruments used to measure wellbeing in people with complex communication needs. The review found that instruments tended to actually measure quality of life – which is different to wellbeing.
The paper’s authors identified four features which should be considered if adapting or developing a wellbeing instrument for people with communication disability. The four features are: ensuring communication access; recognising the relative importance of wellbeing indicators to an individual; collecting information from multiple sources when using proxy-report; and acknowledging environmental factors.

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