Core Projects

Measuring Mental Health in young people with developmental disabilities

Our knowledge about the mental health problems of children with developmental disabilities is largely based on parental report. There is a significant lack of child self-report. Although parents know a lot about their children, they do not know everything.

Some problems are easier to observe from the outside than others. Parents do not see their children in every setting. This might mean we do not have a full picture of the mental health concerns of children with developmental disabilities.

One reason for relying on parent report, might be that the assessments are inaccessible for some young people – they are cognitively challenging (hard to understand). This might mean some children could self-report and some could not. This PhD will involve a range of studies looking at how mental health has been measured in young people with developmental disabilities, whether the assessments have been validated for self-report for this group and what adaptations have been made or should be made to aide them in self-reporting.

This doctoral research is funded through the Swedish Research Foundation as part of the Participation and Mental Health project.

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